All OMS Awareness Logos and designs contained in this website were designed and created by Melodie Walenius. Please feel free to use them in all POSITIVE aspects of raising awareness for kids fighting Opsoclonus Myoclonus Syndrome. However, please do not alter, change or modify any words, colors or structure without permission. Thank you for respecting the work put into these designs and helping to spread awareness in an effort to find a cure.
Website designed and created by RHYTHM OF LIFE - a project of THE NOBLEMEN, a 501c3 non-profit organization. All rights reserved MW 2014
Treatments & Research
We are working diligently to gather information worldwide of different treatment protocols, their successes and failures, the families' stories and refine the efforts of treating OMS. Our mission is to find a cure for these kids. The Rhythm of Life Foundation is partnering with VCU Medical center to launch a research program for the efficacy of Plasmapheresis in OMS patients. We need to raise $1,000,000 to get us started. The cost for one child to go through the extensive protocol is well over $100,000 not including travel and lodging expenses. Please use the link here to donate to this program and help cure OMS!!
Not all OMS patients are created equal...and not all treatments will work for every patient. For some kids, none of the treatments work.
This is a steroid often used in high pulse doses in the place of ACTH. It is also used as maintenance steroids when OMS is chronic. It is also used as a "rescue treatment" during and illness to protect the brain.